Collin Update

Okay...so I'm super, super frustrated.  About 6 wks ago we took Collin to the neuro for evaluation for seizures (absence).  The doctor recommended that he undergo a sleep deprived EEG so we took him for this about a week later.  The EEG did NOT go well and they only got about 6 min of this.  They wanted to reschedule the EEG b/c they really need at least 20 min but we did not like the doctor and wanted to get a 2nd opinion before moving fwd.  The first dr we saw said that he felt like Collin was having seizures and that they would just put him on meds but that he was surprised b/c he didn't see anything while we were in the office (approx 45 min).  Immediately after the EEG I called the ped's office and asked that they give us a referral to the ped neuro dept at Baptist.  They did and we had his appt this past Friday.

Unfortunately, I liked this dr no better.  She said that she felt that it was unlikely that Collin was having seizures but that she felt like he needed to undergo a speech eval and that he may need to be tested for autism.  The first neuro he saw said that he was in NO way autistic (the ped had originally asked for a developmental exam as well) and didn't mention anything about his speech.  He said that Collin was on track and maybe a little advanced in certain areas.  I was absolutely furious.  I felt that she didn't try to listen to him or really pay that much attn to him so that's why she couldn't understand what he was saying.  I've never heard anyone say that after they are around him for a few min that they couldn't understand at least half of what he says.  I have to say that most, if not all, 2 yr olds that I've been around have some pronunciation issues and that you really have to listen to understand what they say.  Obviously, as I'm around him all of the time I understand more than a stranger would but I certainly don't think it's a concern at this point.   My SIL is a preschool teacher and said that he is totally fine and that no kid at that age speaks perfectly.  If, in a year from now, his speech hasn't changed and become clearer I definitely see that there may be some benefit to having him undergo a speech eval but I definitely think it's premature.  In addition, this dr recommended that he undergo yet another EEG.

After leaving the appt I got more and more irritated b/c I just felt that after waiting over an hr after our appt to see her and the 15-20 min exam she gave that I didn't feel comfortable in proceeding w/the EEG or further treatment w/her.  Jared, unfortunately, was unable to attend this appt w/me so he was relying completely on what I said/felt.  As such, it's really difficult for me to know what to do b/c I certainly don't want to ignore something if it needs to be addressed but, at the same time, I don't see putting him through a lot of tests and appts unnecessarily.  She said that even if his EEG came back abnormal she wasn't going to do anything b/c the only treatment would be meds and he wasn't affected in any way by what's going on.  I truly believe that if it were not for my history that they wouldn't have even ref him to a neuro anyway.

The question now is what to do about the EEG and/or further treatment.  I thought it might be a good idea to see his ped (we usually see the nurse practitioner) and see what he thinks after being around Collin and hearing the recommendations of both drs (as they what they said was pretty much opposite of one another).  At the same time, I really don't think anything is wrong w/him.  What do you do?  I guess the best thing is to see the ped but I just don't know what he's going to say either and I hate to keep throwing $$ into this if there will be no benefit.  Oh well...guess we'll just have to see what he says.  Argh!!

Too cute

So last night Jared and I were sitting on the couch watching collin run around and play.  He comes and climbs on my lap and says "Daddy loves you."  He's never said anything like this before...only "I love you".  Not sure why this touched me so much but it just made me think that he can feel a difference in the atmosphere.  I don't know for sure but it was just weird b/c it was completely out of the blue.  

Cheese! :-)

so i'm on the phone this morning and collin comes up and grabs my cell phone and keeps saying cheese.  i asked him if he was hungry and if he wanted cheese and he just looked at me like i was stupid.  my friend asked if he wanted his picture taken so i asked him and that's exactly what he wanted.  i seriously had NO idea what he wanted but thought it was funny all the same.  all of the sudden one of his favorite things is to have his pic taken on someone's phone (i think it's b/c it makes a cool noise).  :-)  he is so funny and seeing things like this make me realize how very quickly he's growing up!